Imperfect Endings: A Daughter’s Tale of Life and Death

The following is an excerpt from my memoir, Imperfect Endings: A Daughter’s Tale of Life and Death. The book is about my mother’s decision to end her life after living with Parkinson’s disease for many years and the struggle my two older sisters and...

Driving Dilema

My husband was a quiet man, soft spoken and calm. When I heard his voice rising in volume and intensity, I paused in the doorway to hear what was upsetting him. He was speaking to his brother on the telephone, and he sounded exasperated. “Harold,” he said,...

Shaking Away

Parkinson’s Disease, a shaking palsy, a ceaseless dance, a movement disorder, the progressive degeneration of the dopamine producing cells of the substantia nigra – and it is so much more. It traps us in our bodies in ways that are deceptive. It robs us of our...

What is Caregiving?

As time goes by it seems that we get to know more about the disease than the experts. Perhaps not the technical aspects, but We know first hand about medications, reactions and side effects. We know the hands-on, daily living challenges not the clinical view or...

Musing about two different Parkinsons

Parkinson’s Law: C Nortcote Parkinson wrote and proposed this satirical criticism simply put “work expands to fill the time available for it’s completion.” This principal is for business, as it goes, an official in order to appear busy makes up...

You just never know, or a Parkinson’s life!

In the cool autumn afternoon there is the sound of shuffling steps, crunching leaves, the rhythmic drag of a rake, then the rustle of a tarp being laid out. The rake propels leaves onto the tarp, the corners are gathered and the tarp is lifted toward a shoulder. In...

Teaching and spreading awareness

Of the many challenges facing the Parkinson Community, I was again reminded today of understanding. Today, class was held at the dental clinic. I had a panoramic X-ray taken (my first ever). Now I don’t know for sure if the assistant ever had a Parkinsonian as a...

Joe, Doors and Parkinson’s disease

What a strange, symbolic and literal relationship this is. Let’s take a look, if You’re reading this, someone you know and love has or had Parkinson’s disease. At sometime they arrived in a Neurologist’s office — I’ll start there. Here we...

Change and Parkinson’s Disease

O Henry! The irony of it all! Long ago, pre-Parkinson’s, I was a welder. Needless to say, with Parkinson’s, the welding went by by. (If one can’t hold hands and arms still, one cannot lay down a straight bead of weld.) Retraining was offered,...

From the Observation Deck

A little over two years ago I was diagnosed with Parkinson’s, and shortly thereafter joined thie Caregiver’s Forum on this Web site – for two reasons: First, I thought it would provide me and my caretaker with valuable insight into the disease, its...
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