Caring for Mom: A Son’s Experience with Parkinson’s Disease

My mother was an independent and strong-willed lady. She didn’t confide in me about her medical issues, although she did tell her friends. My father reached out to me when he heard from Mom’s friends that she wasn’t feeling well, but she never disclosed exactly what...

A New Kind of Marriage

I was fortunate that I never knew my husband before he had Parkinson’s.  Of course, I wished that I had been able to spend time with him when he was his original self. I never got to go boating with him, travel, or raise kids, or live the day-to-day life of regular...

Living with Parkinson’s – Lessons Learned

On March 31 st of this year, I will observe my eleventh year of being diagnosed with Parkinson’s disease. As I say that, repeating it out loud, “eleven years,” it prompts me to realize how quickly these years have gone by. At the same time, I’m truly mindful of how...

It is about tricking the neural pathway

Notes from the author of Ultimate Parkinson’s Tips to Walk Faster, Stand Up, Unfreeze, Turn in Bed, and More Ever since Dyskinesia became a problem for me (five years ago), I began experimenting with reducing my medication in an effort to reduce the...

Imperfect Endings: A Daughter’s Tale of Life and Death

The following is an excerpt from my memoir, Imperfect Endings: A Daughter’s Tale of Life and Death. The book is about my mother’s decision to end her life after living with Parkinson’s disease for many years and the struggle my two older sisters and...

Driving Dilema

My husband was a quiet man, soft spoken and calm. When I heard his voice rising in volume and intensity, I paused in the doorway to hear what was upsetting him. He was speaking to his brother on the telephone, and he sounded exasperated. “Harold,” he said,...

Parkinson’s Treatment: 10 Secrets to a Happier Life

Guest commentary by Michael S. Okun, M.D. , National Medical Director, National Parkinson Foundation. The reason I wrote this Parkinson’s Treatment Book, was to reach as many people from as many cultures and languages worldwide and to arm them with 10 secrets...

Coping…24 hours a day

“The neurologist solemnly announced his findings. You cannot control your tears as your husband is diagnosed with Parkinson’s. From that moment on your lives begin to change. New roles have been established. The patient’s needs may take priority; the...

Change and Parkinson’s Disease

O Henry! The irony of it all! Long ago, pre-Parkinson’s, I was a welder. Needless to say, with Parkinson’s, the welding went by by. (If one can’t hold hands and arms still, one cannot lay down a straight bead of weld.) Retraining was offered,...

Joe, Doors and Parkinson’s disease

What a strange, symbolic and literal relationship this is. Let’s take a look, if You’re reading this, someone you know and love has or had Parkinson’s disease. At sometime they arrived in a Neurologist’s office — I’ll start there. Here we...