What is Caregiving?

As time goes by it seems that we get to know more about the disease than the experts. Perhaps not the technical aspects, but We know first hand about medications, reactions and side effects. We know the hands-on, daily living challenges not the clinical view or...

Shaking Away

Parkinson’s Disease, a shaking palsy, a ceaseless dance, a movement disorder, the progressive degeneration of the dopamine producing cells of the substantia nigra – and it is so much more. It traps us in our bodies in ways that are deceptive. It robs us of our...

A Caregiver’s Journey

Colorado blue skies and Rocky Mountain Highs have nothing on the glorious Hudson Valley today. It’s a crisp, clear, wonderful sunny day and the sparkling water,colorful sailboats and majestic Palisades framing our wonderful waterfront walk are spectacular. As I...

The Symptoms I Hate

What follows is a peek into the mind of a PD Patient. In the early stages of this disease, I find these symptoms particularly bothersome: Tremors: Fortunately this symptom does not, as yet, have a serious impact on my day-to-day activities. My tremors are quite mild,...

Ain’t No Mountain Higher

Reflecting on my initial reaction when my neurologist confirmed a Parkinson’s disease diagnosis, I must admit I had no clue as to what to expect. While awaiting my first appointment I did a few internet searches and did get some meaningful insight into such...

From the Observation Deck

A little over two years ago I was diagnosed with Parkinson’s, and shortly thereafter joined thie Caregiver’s Forum on this Web site – for two reasons: First, I thought it would provide me and my caretaker with valuable insight into the disease, its...

The Leash

As my Parkinson’s symptoms escalate, I have begun wondering about when my caregiver will have to put on “the leash.” With my typical male ego apparent, I have already steadfastly refused to accept help in managing several PD symptoms. Among the...

We all seem to be facing the same problems

I was a speaker at a Parkinson’s Disease Symposium recently and I found it to be a very interesting and enlightening experience. What I found enlightening is something I have been aware of because I have many PD caregiver friends – it’s the similarity in...

What Causes Changes in our Feelings?

Sometimes when I sit down to write a caregiving column I have a very specific idea of the topic I want to write about. Sometimes I just start out by venting my feelings at the moment because they are on my mind. That’s what I am doing today. Life has been...

Tired of thinking about and dealing with Parkinson’s disease?

Have you ever been tired of thinking about and dealing with Parkinson’s disease? I really am at this point, so I decided to do something about it. My feeling is that circumstances rarely improve in any substantive way unless we put some ingenuity and effort into...