Can we find any humor in what we do?

The correct answer is – we had better!! Good humor is the health of the soul, and it certainly can make our lives more enjoyable. It’s sometimes hard to find things to laugh about in caregiving, isn’t it, especially if our loved one has advanced disease or...

The Parkinson’s way

“There are moments when everything goes well. Don’t be frightened. It won’t last.” That’s where I am right now. Everything is stable and going pretty well. Stan’s medications are managing the Parkinson’s well, and the addition...

Caregivers also ‘have’ Parkinson’s Disease

The longer I am a caregiver, the more I realize that it’s very important to understand yourself and what your needs are – what satisfies you – what kinds of behaviors make you angry – what makes you happy and thus more patient? Why is this important and...

Caregiver’s Bill of Rights

Last month, I incorporated the “Caregiver’s Bible” into my column. This month I’d like to take a look at the “Caregiver’s Bill of Rights,” whose author is also unknown, but has also been in many caregiver publications. I...

Depression, Part 1

Does it surprise you to know that caregivers have very high rates of depression? Not me, because I’m sure I am one of them. My guess is that most of us have, are, or will experience depressive symptoms at some time. As the disease progresses we may be dealing...

Depression, Part 2

In my initial column on depression in caregivers, I focused more on the ups and downs of dealing with Parkinson’s Disease, the ‘blues’. It is very common when dealing with chronic illness to have good days and bad days, days when we seem to function...

Give Me Patience – But I Need it Right Now

During the course of any day, we as caregivers encounter many situations that require us to exercise more patience than we think we have. It might be as simple as waiting for our partners to finish a sentence, or changing our plans because their immediate medication...

It’s OK to Get Angry

Do you ever get angry? As caregivers, I think we all get angry at times and I believe that it’s okay. ‘Anger is a signal and one that is worth listening to. Our anger can be a message that we are being hurt, that our rights are being violated, that our...

Communication

Communication has been important to me since Stan’s initial diagnosis of PD. He is not a frequent talker, but I am convinced that what has allowed us to deal well with Parkinson’s disease is that from the beginning, we have made an effort to communicate...

In the Beginning

Our life with Parkinson’s Disease began in 1980. I’ll always remember because it had been the most stressful year of Stan’s life. He was commuting from the Maryland suburbs of Washington, DC to Johns Hopkins University in Baltimore for another round...