For those who care for someone with Parkinson's disease
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Thanks Umajane about the info for the drooling. I thought I'd start a new topic since the other one didn't refer to drooling (I know we have discussed drooling before, but the blog got lost somehow). I thought someone said the mouth got dry, so I am very glad to hear that it doesn't after having Botox. My husband gets Botox for his excessive blinking and they said at the beginning it would take a week to 10 days for it to work, so I imagine the botox in the cheeks for drooling would be the same. Does that happen? We see the family doctor soon, and the next Botox for the eyes much later, so I was hoping he could contact the MDS who does the injections to have it done, but he might not want to over step him. I might have to wait until we see the MDS in person though. I hope he agrees to have it done for my husband as it is very embarrassing in public for salvia coming down and showing on the shirts. It would also save a lot of laundry for me too.......  This is off the subject, but I just found my notes about the one of the side affects with Sinemet is excessive blinking. I wish there was something better to take......... but I guess there isn't..........  It just seems my husband is getting more of the side affects but it could also be the progression of the disease unfortunately.
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| We saw our family doctor and he is going to contact the MDS who give the Botox for the eye and ask about the Botox for the drooling. |
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Nine days ago he got Botox for drooling. It hasn't slowed down yet, so hopefully it doesn't soon. The doctor said it would take a week to 10 days. Maybe he needs a stronger dose. |
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| Can someone answer some questions I've got on the Botox? I understand the gist of it and I've never had it done myself so, How does it feel? Can anyone who has had it personally done tell us other patients? Another question is where do they inject it? I mean into the muscles around the saliva duct itself, or close to it to exert pressure to close or narrow the duct? You know, in the duct to block it or around the duct to restrict flow. Going along how does this affect eating? Saliva in our mouth mixes with our food not only to start the digestion process but also to help with swallowing our food lubricating it so it slides down easier. Then do you have to drink more liquids while you eat? That would help with the lubrication but not with the digesting that the saliva starts. I'd really like to know about these things, and as we'll never know unless we ask I figured I'd ask. Thanks for any replies. |
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My husband had it done as I said in the previous blog. Three needles were injected in the glands on both sides, but I don't know the exact location. It looked like it was just below the jaw bone in the gland on the neck before the ear, if that helps. He was given a low dose and it hasn't really helped yet. He still drools so maybe he needs a bigger dose but we won't see the specialist until the end of March as he gets Botox for excessive blinking too. It isn't suppose to interfere with swallowing so I can't comment on that part of your question. My husband swallows okay now. The injections in the glands didn't hurt unlike the injections around his eyes which are very painful. |
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| I was kind of hoping other PWP's would offer up as I really wanted Their feedback. From every thing I've read it doesn't stop drooling just slows it down. Also it has to be monitored closely because only so much can be administered. I know the threshold of pain differs from person to person and that's why I wanted a patients input because if it isn't happening to you, you don't know how it feels. Also reading up on botox a side effect although a rare one is confusion. But I do thank you for your input. And yes I have read the comments on the other different threads or postings. |
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Ben hadn't had this issue at all, so he's no help on this one. How many other PWPs are still here? I think we have at least one more though my mind escapes me right now for names.... |
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My husband doesn't go on this website or any other one as he doesn't use the computer anymore. As a far as the pain threshold for Botox for in the glands isn't that bad and if it works, you could endure it. My husband goes through injections around his eyes which helps and it's much more painful. I have never heard of Botox causing confusion, but he does have confusion which is probably from something else which we are looking into. |