Helping Those Who Care for Parkinson's Patients
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Hi Everyone, I think I just need to vent/talk. I am so overwhelmed and discouraged that I don't know what to do. Husband 68 PWP for 22 years, I am 63. He has significant dementia and now can barely walk after hip fracture in December. No meaningful conversations, cant take him out unless another person is with me, every single ADL is a chore. I have help but am depleting all our savings to do so. I try and work, I work from home but even when caregivers are here it is chaotic and I can barely get anything done. I am so depressed and my medication for that doesn't seem to work. I am going to the mountains this weekend and the prep to do that is overwhelming. I shouldn't go but if I don't get out of here for a day or so I will go crazy. The caregiver that is living in for free is upset that he will have to take care of my husband for one night. I hired another person for the other night. My sadness is debilitating and I know things will just get worse. I am so sad for my husband who used to be a vibrant, athletic man. None of this is his fault and I am so guilty for feeling sorry fore myself. As I said there is no real reason for this post just that I need to talk. Thanks and blessings to you all |
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You don't need a title or reason to post: we have all been there. Post away, tell it like you see it, and don't worry about anyone taking offense or judging. Venting is therapeutic and sometimes the only therapy we get. You sound exhausted and I am glad you are getting a break, even if only for a night. It sounds like you may need more help than you have. I would expect any person I allowed to live in my home for FREE in exchange for helping caregive would be okay with taking a night here or there, but that's me. I hope you renew while at the mountains and are able to return home stronger and in a better place. PD is hard, and you need to be sure you take breaks or else you won't be able to help anyone, including yourself. Hugs to you, lfac |
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Sounds like you really need the break. Caregivering does get overwhelming at times. Don't feel guilty, go and have a good time. |