Helping Those Who Care for Parkinson's Patients
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I'm new to posting on this forum, actually I'm new to this kind of sharing online. I found you all about 2 months ago while looking for a caregivers site and I think I've read every post in the previous 30 pages and found it was so comforting to see your stories and the understanding and support that was shared. I had felt for a long time that there was no one who could really understand the adjustment needed when a diagnosis of PD radically changed ones life and expectations for the future. Friends want to understand but are limited and the PD support group for PWP and the care partners/givers, while caring, are somehow too close to share some of the more personal challenges. This forum is a very good mix of the best of both worlds; people who understand and a safe place to share some of the fear, frustration and sadness that is part and parcel of this disease. My husband was diagnosed in May 2008. I went online immediately to try to understand what we would be dealing with. It became apparent that we had been experiencing this disease for several years already and had no idea what it was, just that our world was getting smaller and smaller as he had less and less energy and we were doing less and less outside of work. His progression is fairly slow for which we are grateful but of course there is progression. I would like to say thank you to Violet for the tip about boiling bananas and drinking the banana tea before bed, it has really helped my husband sleep. I knew I had to thank you and so decided that it was time to for me to join the conversation. Blessings. |
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Hello MJ, I won't say "welcome," since this is the club no one wants to be eligible to join -- but since you are here, we are glad to walk alongside you. And Yay for banana water. I always feel a little nuts in telling people about it because it sounds so strange, but it truly has changed my life. I remember standing by the side of the bed for the 5th or 6th time one night, tears of exhaustion and frustration streaming down my face as I silently held the urinal for him. I'm glad it has worked for you. Thanks for telling us. VV |