Helping Those Who Care for Parkinson's Patients
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I hate to sound like I'm complaining, but my husband has peed on almost every piece of furniture we have. This morning I came in to find him on the sofa, snoring away...he had gotten up during the night and sat on the sofa and then peed all over it. It must have been a lot, because it dripped off the bottom and formed a pool that ran all the way under the sofa almost to the wall. Thank heavens we have tile, so it was easy to clean. The sofa, though, ugh. He woke up as I was sopping up the urine from the floor. I asked him why he wasn't wearing a depends. He actually had nothing on under the shorts he had put on. He told me that I had told him NOT to wear them! I was so upset. I told him that was not correct, I never said that. Then I asked him why in the world would I tell him not to wear depends when I had removed all of his underwear from his dresser and replaced it with depends? He had no answer. So frustrating, especially when he tells me that he agrees it is ridiculous to live like this. What? In the meantime, our house smells like urine and no one in the family will sit on anything except what's in their bedroom. Even my husband's sister who briefly came by the other day never sat down. I am thinking of washing the covers of the chairs and once clean, putting them in thick plastic bags to protect them, and putting tarps over and around the sofa cushions after I clean those. It will look awful, but it's not like we ever have any company other than family, and even that is rare. I was planning on buying a lift chair for my husband but am not sure now-it might just become the latest victim of the bathroom urgency issue and get ruined as well. We have a doctor's appointment coming up, thankfully, and I'll see what they recommend. In the meantime, if anyone has any suggestions, I'd love to hear them. |
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| I don't profess to be an expert on this topic, but I can tell you my experience. When I noticed that my DH/PWP was having problems occasionally holding his urine, I covered the mattress with a plastic mattress cover and put a mattress pad over that before the sheet, so it wasn't so hot to sleep on. Now he sleeps in a hospital bed, so the mattress is covered with plastic. We bought a used lift chair before my DH was diagnosed with PD. We are now on our 3rd one. I bought a twin bed plastic mattress cover and put it on the chair, then I put on a slip cover, and then put a towel on the seat over that so it was more absorbent. Because my DH couldn't get up from the couch, he didn't sit or lay there. Now my DH has a catheter because of urine retention, but sometimes the catheter leaks, so he wears depends with an extra pad in the front. He gets Urinary Tract Infection often (because of the catheter) and that causes the catheter to leak, which sometimes gets past the depends. Now I bought a washable pad from the medical store to put under the slip cover seat. I can identify with you when you said you were so upset. It is hard when they seem to understand what you are discussing and then turn around and do the exact opposite. My DH does this too. I suppose it's the disease, but it's still upsetting. I have asked my DH not to empty his catheter bag without me because he gets it all over the toilet and sometimes forgets to close the valve. So I get upset when he does it anyway. I don't have any magic answers to get your husband to wear the depends. Sometimes my DH/PWP takes them off and can't get them back on. I do think this urine control problem is caused from PD or the PD medication, so I hope your doctor can help or refer you to someone who can. I don't know that I would have been able to do all this with children still at home. It just seems so unfair. You are in my thoughts & prayers. |
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Lurking, I don't know if you plan to replace furniture, but chairs and sofas that are essentially benches with replaceable cushions might be an option. Or, furniture destined for use in agencies and facilities where incontinence is typical use cushions that are covered in waterproof plastic fabrics. Check out this website http://info.furnitureconcepts.com/blog-0/topic/furniture-for-incontinence Good luck VV |
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| VioletV, Have you ordered or know of anyone who has ordered from this company? I looked at this site because I would like to order some dining chairs with arms and back casters, but it said that they only sell business to business. |
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| Thanks everyone, the furniture website looked good and practical. But if they only sell to businesses, that's a problem....maybe I can call around to some facilities in our area to see what they might recommend. I'll let everyone know what I find out, there has to be a company out there that sells to individuals. |
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a few more ideas are here: http://dailycaring.com/incontinence-protection-for-furniture-and-cars-makes-cleanup-easy/ Going along with VV's idea of bench and cushions, maybe weather-resistant patio furniture might be an option? https://smile.amazon.com/s/ref=nb_sb_noss_1?url=search-alias%3Daps&field-keywords=outdoor+bench I wonder if a water-proof baby crib mattress would fit on a bench? https://smile.amazon.com/Safety-1st-Heavenly-Dreams-Mattress/dp/B004044LD4/ref=sr_1_4_s_it?s=baby-products&ie=UTF8&qid=1487572351&sr=1-4&keywords=waterproof%2Bcrib%2Bmattress&th=1 If you could find someone to sew cushion covers, there are water-repellant fabrics similar to this: https://www.fabric.com/buy/ug-424/tommy-bahama-indoor-outdoor-redonda-coconut how to make a fitted sheet: https://www.youtube.com/watch?v=jqLwkz52DHo I've used heavy canvas to make a shower curtain. The cloth is so tightly woven that water beads and rolls off. Not sure if it would work the same for seating. |
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| My dear, we have similar issues. 20 years into PD and now he cannot move fast enough to get the "jug" or to the bathroom. We covered the lift chair seat with two plastic covered pillows. The cases are easy to wash. I found a beach towel the same shade of navy. It is easy to wash. I bought six of each. I am using crib protectors under because they are half the price of adult style. Just like puddle pads for dogs are half the price of chux. We do what we can. BTW, best thing to use on cloth car seat is opened up plastic kitchen bag, cardboard insert, pillowcase over all. |
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| It seems like everyone has given good suggestions. I would like to suggest you get a carpet cleaner with the furniture attachment to clean your furniture. If you can afford it, there are companies that can come in to clean and make things like new. They clean up water damage and fire damaged items. It would buy you some time. |