Helping Those Who Care for Parkinson's Patients
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| After some self destructive behavior, I walked into the Hospice office and asked for help. Whether my PWP would qualify was unknown. Mistakenly thought hospice was provided for those 6 months from end of life. Provided them with some information and the next morning the assessment team was here. PD and dementia met the general criteria. He also has lost speech (less than a 6 word sentence) and his ability to swallow is compromised. Add to that he is losing weight due to malabsorption in his intestinal tract due to PD. While in my home they made a phone call to their hospice doctor and my husband was enrolled. All week it has been a parade of support, equipment, and guidance. They watched him walk and felt he was so unstable that using his walker in public was not safe. That afternoon a transport chair fitted to his height and weight arrived. A volunteer companion will visit each week. A nurse will be here 2 x a week, an aide also 2x a week. His care will be centralized to the hospice doctor, no more running around to 9 different doctor's offices. A Chaplain has been here and provided spiritual comfort and emotional counseling. She read a poem to him and they discussed it. He felt relief from some of his emotional distress. Also, they provide 5 nights of respite at their respite site each quarter. We can have services as long as he declines, but with PD we all know that decline is slow and steady. We are no longer on this journey alone. There will be professionals here to help, even if placement becomes necessary, they know all about facilities and care homes. Best part their services are covered under Medicare. I feel like a huge weight has been lifted off my chest. |
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| My heart swelled with happiness for you. Please don't misunderstand. I am happy that your journey is now in the safety and companionship of others who care. God bless you and your PWP, and your TEAM of caregivers. |
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| ❤❤❤❤❤ what a blessing..very lucky that we have that kind of services... something for me to look into thanks for sharing... |
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My husband qualified for hospice and was on it for six months. It was wonderful. I can't say enough good things about it. But................. A doctor from that group came in for 5 minutes and declared that he didn't qualify any longer because he had not fallen, had pneumonia,was bedridden. . So he was dropped. He is incontinent, uses a walker all the time, can't drive, can't do anything but eat himself, get himself dressed after I put out all the clothes he needs,and get undressed after I set up the bed, etc. He sits in his recliner 95% of the time he is awake, has a hospital bed so that he can lift the head in order for him to get out of bed. So I am wondering how much more he has to be limited before he can have hospice again. |