Helping Those Who Care for Parkinson's Patients
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| I'm so, so, exhausted this morning. Yesterday for some reason my hubby was "off" from 3 in the afternoon until long after midnight. He got his meds on time and I even injected him twice with Apokyn. I hate, hate this "off" time. He just makes noises and squishes up his eyes and can't do anything at all and does a rowing motion with his arms. The caregiver gave him a sandwich for lunch with a new kind of bread, Garlic Naan from Trader Joes. It has 7 gm of protein and I wonder if that prevented his meds from working. This is no way for anyone to have to live being "off" for so long. It's so sad and I feel so helpless. There should be something that can be done to help him live a better life. We go back to the neuro at the end of the month but probably nothing will help. |
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Flowers, you've had such a hard time lately and I am wondering if there is anyway that you can get a break? I'm not talking about a few hours here or there, but a whole weekend (or more) where you can get away or have your husband in a facility so you can just rest. Many facilities have respite care for this very situation, and I would encourage you to call around and see what might be available. It is amazing what rest and a break from caregiving can do, and I hope that you are able to get one. Please keep us posted. |
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Hope he and you are having better days now! Our neurologist does not think protein in any remotely reasonable amount affects drug absorption. So I do not worry about it. whatever the cause was for your husband's off day, I hope it does not repeat itself. it isn't even one day at a time.... it is one hour at a time. |