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Topic Hospice at home? Go to previous topic Go to next topic Go to higher level

By Cordelia1 On 2019.09.07 23:05
Hi. Sorry I haven't posted in a while. Dad is in hospital with pneumonia and we are planning to get him into hospice Monday. Is it possible to bring him home when he is very ill and a 2-person assist? I would have to hire 24/7 care because I cannot lift him off the toilet, bed, and chair. I don't know what options we will be given but the LTC and nursing homes are awful near us. All he wants is to come home. Is this really possible with advanced Parkinson's?

By LOHENGR1N On 2019.09.08 01:16
I don't know about other areas but here in western Massachusetts yes. My friend just passed and His Wife had hospice in home. He held on quite awhile.

We were partners in work (gas, test and repair welding) Then welding and cutting large transformers at GE. He was in His 35th year of Parkinson's (I'm in my 34th year.). His sister told me they had hospice in I visited Him a few times in His last month. It was hard as this damn disease wasted him away. My last visit he couldn't get out of bed my pca and the hospice nurse told me I could go in my pca urged me to but I said what you don't understand is we were close spending time fishing, stealing apples from local orchard just raising hell while we could. I'll remember the big smile he had on the last couple visits when he saw me.I told my worker you don't understand that is my future and I'd rather think of him those last times he was in his wheel chair. A couple days later I came back from the store my message light on my phone was flashing and the message was the one I'd been dreading, his sister ..Al..call me. My friend and buddy had just passed. I'm sorry to unload this on your post but it just came out. But yes although regulation and rules differ however you should be able to have hospice in home.

By Cordelia1 On 2019.09.08 22:04
Thanks, Lohengrin. We are in northern NY so I am afraid I know what our limited options may be. My brother has been running away and denying so I've been trying to cope as best as I can. I've just started notifying his friends and family so they can talk to him while he is still somewhat himself.

My dad also loved fishing and raising hell. I can't imagine what you must be going through but I am sorry you lost your friend. I hate this damn disease and I don't understand why they haven't come up with better treatments since Sinemet.

By Lynnie2 On 2019.09.09 15:28
When your dad goes into a Long Term, you have to give him a couple of weeks to get used to it.
Sometimes it's better to stay away for a while so he will get used to the routine.
I know it's hard to do, but sometimes tough love has to be applied.
I know all about this disease as my husband had it for 12 years. Thank goodness he didn't get upset with the long term, but I know it wasn't easy for him especially at the end when he couldn't walk and had to be put in a sling to be moved.

By moonswife On 2019.09.14 04:31
Cordelia....we did this for 10 years after husband's DBS in 2009. Hospice for last 2 weeks of life. Used a hoyer lift by myself before that to get to toilet, shower, change sheets, get into wheelchair. Most do not have a house set up with wide doorways. We planned well in advance...Mike had PD 25 years. He still went outside until he just could not. Your Dad is fortunate to have you to visit him often and bring goofy gifts to remind him of his old life. Bless you dear.


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