For those who care for someone with Parkinson's disease
[Home] [Forum] [Help] [Search] [Register] [Login] [Donate]
You are not logged in

Topic Lurking, did you get help with your sleep? Go to previous topic Go to next topic Go to higher level

By jcoff012 On 2019.11.13 13:08
Carl and I had a huge fight this morning because, as usual, he came upstairs at 5:30 to “sleep”. This time was particularly bad because he screamed out and kept thrashing while still asleep. I, however, was wide awake since he came upstairs! In anger, I said, “STOP! I can’t sleep! I’m tired!” He immediately got out of bed, got a shower and left for our daughter’s condo without me...(which was fine because after 4 months/7days a week I’m worn out!) BUT, even after *I* apologized to soothe this situation, he lashed out at me...”I can’t sleep, so I come up to get comfort and you push me away. I don’t deserve this!”

So, I thought of you and your posts on similar sleep issues. Did you find anything to help? He is taking Melatonin, a pill his neuro suggested for anxiety, and he has gone back to Rock Steady boxing...

If you have any suggestions, I could use the help. I need uninterrupted sleep once in awhile, you know?

By lurkingforacure On 2019.11.17 21:07
Hi Jane,
I did, and although it is not consistent-I'll still take it! I told our neuro we needed a sleep aid for my husband and he scripted us a very low dose of quetiapine. This helped but was not consistent, as I mentioned, so we have since had the script doubled. My husband will still occasionally yell me awake at 3am, but it is so much better than before.

I was angry at our neuro for not suggesting it himself sooner, and angry at myself for not thinking to ask for it. The kids and I suffered for years when we could have been getting better sleep, so don't be shy about asking for the help. You'll be so glad you did:)

© · Published by jAess Media · Privacy Policy & Terms of Use
Sponsorship Assistance for this website and Forum has been provided by by people like you