For those who care for someone with Parkinson's disease
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I hope that those that have lost their spouses or loved one last year due to Parkinson's are getting along okay. I lost my husband in February 2019 from Parkinson's he had for 12 years. He was just 70 years old. It doesn't seem possible he's been gone over 10 months. We were married for almost 50 years and went together through high school for 5 years, so most of my life with him. He was in a nursing home for 8 months before he passed so the Christmas wasn't the same in 2018 and very different this past Christmas when he was gone from us. Life is different now that I am alone, but I try to keep busy. My girls came home for Christmas and one stayed for a whole week with me, so that was great. I got a few ornaments for our tree to remember him. Also the funeral home put large Christmas trees in front of the Post Office with the names of people who have passed away in the last 10 years. They had 6 trees this year with 1000 names on it. I bought a few gifts for myself and put them under our tree from my husband. It was just my way of feeling as though he was still here for a while. I know it was difficult for everyone that lost their loved one and I hope you did something to remember them this year. If not maybe next year you can do it. I didn't send out my usual Christmas cards this year but hopefully next year I feel up to it. Time passes by so quickly and if you have a guy who has Parkinson's and you are a caregiver, I know how tough things can be most days but try to have patience with him. I hope you are able to get some help in order to have a break. You need to take care of yourself too. Best Wishes for this coming year, From a former caregiver Lynn |
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| Happy New Year, Lynn. Sending you good wishes that this year brings some peace and joy for you. |
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Thanks, i appreciate your thoughts. I left the Christmas tree up and left the red ornaments and red lights on it. Then I added Valentine hearts and strings of hearts and Cupids, etc to the tree. I also left the special ornaments I got for Christmas to remember my husband too. I did this one year when my husband was living and he enjoyed it, so I thought I'd enjoy my tree again this way for a while My daughter said "Whatever make you happy Mom" lol |
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It will be a year on Sunday since my husband passed. This year has gone so fast. My girls are coming home this weekend to be with me. I still have my tree up for Valentine's, so the girls can help me take it down before they leave. I might buy some flowers for myself, lol. I put a fitting poem in our town newspaper under In Memoriam in memory of my husband. I miss him so much, but I am doing okay. I think of all the caregivers on this forum and I pray that things are going okay. I know how hard it is to look after their loved ones. Sincerely, Lynn |
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Lynnie, Thank you for updating everyone. I often wonder how others are. Carl’s PD is basically the same; he’ll be 72 the first of March. He is, however, now starting to need help with some of his shirts and jackets, drives too fast, temper tantrums...you understand. On days that are tough, I pull back and remember the strong, handsome man I met in our senior year of high school. We will celebrate our 53rd anniversary in June and, like you, have so many good memories that outweigh the bad... I hope you are able to find renewed happiness in your life. Take it one day at a time, one memory at a time, and make new memories to NOT replace the old, but to help bring the future into focus. Again, thank you for posting. Take care of yourself! Jane |
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Thanks for your thoughts. I know it isn't the same. I know you are thankful for your many good years you had together. I hope you have made albums in the past so you can look at your memories together someday. It won't get easier, as you know, but hopefully when it gets beyond your care, you can have some help with him. Yesterday it was a year since he passed. I did a mixture of things yesterday. First I went to church and the minister's wife prayed for me. Then my daughter and I went to Brunch with some church members. In the afternoon we stopped at the cemetery to see his grave. Next, you will laugh as it doesn't fit into something a church person should do. We went to the Casino and I played the machine. I had never been there before, so it was kind of fun. I wouldn't do it on a normal basis as I am not a gambler. I was given $10 to start, so I won a little, but lost the $10. Then we had dinner at the restaurant there. I ordered a pizza which was way to much, so I brought it home to eat today. I was glad to have my daughters here to help me get through the day. |
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Lynnie, We go to the casinos, but not too often since Carl won $1250! I didn’t! We put half in the bank and spent the other half on replacing outdoor plants that didn’t survive the cold. I was thinking of you and hoping you survived that day. It still pulls at my heart to visit the cemetery where we buried our daughter 33 years ago. It isn’t easier, but the pain is lessened by time. I hope that for you. One day at a time is cliche, but true! |