Helping Those Who Care for Parkinson's Patients
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Hello brave caregivers, My beloved husband passed away almost a year ago (early onset) but I continue to read and research about Parkinson's. I recently discovered this speech aid, it looks like a hearing aid but is for speech. I so wish this had come in time for us, as I think it would have helped us in so many ways-just being able to communicate helps avoid feelings of isolation and withdrawal, and being able to understand what my husband was trying to say would have helped me as a caregiver as well as him. The device is called SpeechVive and it is extremely effective. I sent our former neurologist a note about it and he is using it for several patients. You can read about it here: https://www.speechvive.com I'm not affiliated with this device and have nothing to gain by this post, other than hopefully helping others deal with this horrible disease. I imagine all the ways this device could have made our journey easier, what a godsend it would have been. My husband had a fabulous sense of humor and I hate to think of all the jokes and puns I missed because I couldn't hear him or understand what he was trying to say, and worse, how he must have felt when he made a joke but I didn't respond appropriately because I didn't hear him or have a clue what he said. Or the friends who stopped coming to visit because conversation was so incredibly difficult. Breaks my heart. I hope this is helpful to others. I understand Medicare will cover it, as well as some insurances. Good luck, all. You will never regret loving your spouse, family member, or friend all the way through his/her PD journey 
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I wish my husband could have used this speech device too. He tried to say something and when I couldn't hear him, I would ask him to repeat it. But then he couldn't remember what he wanted to say. His voice was so low that half the time I couldn't understand him. Hopefully others see your message about the device and able to get it for their person with PD. My husband passed away 2 years ago and I miss him every day. Thanks, LYNN |
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Good to hear from you lurkingforacure Thank you for the information. My husband has declined in the last six weeks and his speech is now a whisper. I am not sure if this device will help as the people in the advertisement appeared to have a good base volume compared to him. But I will investigate. I hope you and your family are safe and coping with your new norm. |
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I am sorry to hear that, Checkmate. Not being able to communicate makes everything harder, for both the patient and the caregiver. I would give this device a try anyway, if it were me, especially if your neuro will support you in your efforts to help your husband talk louder, more clearly, better. What I loved most reading about this device is that it sounds (pun there, haha) like it works almost immediately-no therapy or exercises needed, which my husband just would not do-so the reward happens pretty much right when you start talking and using it instead of gradually over weeks and weeks of therapy/exercise. If you try the SpeechVive, please post and let everyone know how it works for you and your husband. The more PWP and their devoted caregivers that can be helped, the better
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