For those who care for someone with Parkinson's disease
| [Home] [Forum] [Help] [Search] [Register] [Login] [Donate] |
| You are not logged in |
|
| ||
|
Last night and today, my HWP started having delusions. Yet another shocking new symptom to witness. I knew this time would come, but not quite so soon. He was a general contractor and he thinks we are being sued regarding one of his jobs. We are not being sued. He fears we will lose all our money and he is very upset he has failed me. He said the process server came last week and asked for our Visa card, which didn’t work and he didn’t have any other credit cards (he does). Just to be sure he wasn’t somehow scammed, I checked all of our credit cards and there were no new or unusual charges. I also removed all credit cards from his wallet. He talked about this all day! He will not drop this story and believes it to be true. I called the neurologist and she ordered a urinalysis to check for a UTI. Results tomorrow. This situation was very scary. I left him alone today to go for an exercise class and later for my doctor appointment. Then, I started thinking that maybe I shouldn’t have left him home alone. He was delusional, but not in danger of harming himself or anyone else. But did I make a mistake? How do you determine when it is no longer safe to leave HWP alone??? |
| ||
|
That's hard to say, probably best to ask the doctor if he/she thinks it's safe to leave hubby. Thanks God we live next door to our business and hubby comes with me every day, so when he falls we can help him (Notice I said WHEN he falls not IF). I understand about the delusions. Sometimes he accuses me of doing or saying something I know I didn't. And you're right he goes on and on about it....... sometimes days. He is constantly asking what day of the week it is and what's going on (Doctor appts, etc.) even though I just told him. So hang in there and love him the best you can on a day to day basis and know you're not alone. Prayers for you and your family. |
| ||
|
What a difficult development. I dread this happening and my heart goes out to you all who are dealing with this. It seems it must be hard enough to handle the situation much less having to defuse the PWP and their fears. I already find myself picking up the pieces when I miss heading off an issue and I can only imagine what you are going through as you struggle to make sure your PWP feels safe and then make sure you have your legal security, financial exposures and medical care under control. You are being so strong. Learning about this issue helps me understand what is ahead. NoMatterWhat |
| ||
|
Hi My husband passed away Dec 31 2021. He had many delusions on and off for the last 10 years . Often he had a UTI and once this was treated with antibiotics the delusions went away. However there were other times when there was no clear reason for having the delusions and they would come and go. There was no convincing him that what he was thinking was delusional so if it was of no harm to him or the people around him I just went along with it. However if what he was thinking could be of harm to him I would tell him it wasn’t true and hope that at some level he would believe me. I would not leave my husband alone during these episodes because there was just no way of knowing what he might act out on. The last three years of my husband’s life he was in long term care. He was prescribed medication which did help until the last year of his life when he developed delirium. In the early stages my husband would have short episodes of delusions and then they would stop for along period of time. I hope you find a solution for your husband’s delusions. Hugs |
| ||
| My deepest sympathy to you Checkmate. Here comes a couple of hugs for you and your family(()) |
| ||
| Thank you Poollady always nice to receive hugs 😘 |
| ||
|
Checkmate, My hugs come to you in the form of my thanks again for sharing your experiences with us on this forum, to continue to check in on us and to continue to give of yourself as you share your precious memories of love and struggle. I am grateful to know this forum is here, and will be here, for us to gather and offer support no matter where we are in the journey of this disease. NoMatterWhat |
| ||
| So my mother has started seeing dead people as well as nieces and nephews that live out of town around the house and speaking with them. I know this is part of the disease but I feel helpless. She is still caring for herself but is having difficulty determining the difference between the delusions and reality. We have had these before to a much lesser degree and she needs they were not real. I was thinking about a memory care assisted living facility, but I’m not sure. I think if I take her out of comfortable surroundings it will do more harm than good. |
| ||
|
I am so sorry for your loss, Checkmate. I also want to thank you for continuing to stay involved. Also many thanks to you all for your comments on your experiences. The last two months have been the worst in my entire life and I feel the need to share with you all what happened. My HWPs delusions became very serious over several weeks and he just could not let them go. He was either lying in bed in fear in the fetal position or calling my kids telling them about horrible things that were about to happen to them and their children. He gave them bags of our clothing and food to hold for us when we were destitute. Although he never threatened me directly, I was very afraid of him and my kids were afraid for me. He wouldn’t allow me to buy groceries because “they” would just take them anyway. I had to sneak out to get them when one of my kids was over. The few times we went out together, he was sure the Police would be in the driveway when we returned to arrest or evict us or the house would just be gone. His delusion was very detailed and he set times when the events he predicted would happen. There was always an excuse when nothing occurred. After 2 trips to the ER we finally got him admitted to the inpatient behavioral health unit at our local hospital. He was suicidal and I found out after he was admitted that he was also thinking of killing me with a knife to save me from “them”! They kept him for 2 weeks and gave him lots of meds and sent him home virtually unchanged with nothing, but prescriptions and a psychiatrist appointment in October! Oh, and they told us to hide all sharp objects! Lol My son put a deadbolt lock on my door so I could sleep. Our situation was unbearable! Luckily, after just four days home, a relative was able to get him admitted to a different hospital. Along with med changes, they gave him six Electroconvulsive therapy (ECT) treatments during the 3 1/2 weeks he was there. So far, they seem to have worked! He has been home for 1 1/2 weeks and only very mild delusions, generally not even mentioned. I so hope they won’t return, but I know they probably will eventually. For now though, we are good. They also gave him a psychiatrist appointment next week! |