For those who care for someone with Parkinson's disease
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My husband was approved several months ago for social security disability. Today he had to call them about a problem with his online account and the customer service person was awful. She asked him rapid-fire questions and then yelled at him for asking me for help. He was so stressed he couldn’t even remember our address or how to spell his name. I’m thinking I might need to go through the steps to become a representative payee for him with social security, but I’ve heard it’s hard to do. But he really can’t manage his finances alone and I need to be able to discuss his account directly with them when problems arise. Does anyone have any experience with this or any insight if this is the right way to go, or if there is a better way to assist? |
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| No experience with Social Security but it might help if YOU make the initial call, explain to the representative that they need to be patient with hubby. If they give him a hard time, ask for their supervisor. Stay strong! |
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Hello, I am not familiar with SS but maybe a call to your local Office of the Aging would be helpful. There may be someone there who can help you get your ducks in a row before You invest your time and energy with the SS Office. It is such a shame your husband got the representative that he did. I find that with my current brain injury, I am telling everyone right up front that I am recovering from a TBI and am looking for help. I am not sure how your husband feels about putting his PD out there but maybe the rep would be kinder when they are made aware they are talking to someone with a disability. That may cause them to snap out of automatically becoming irritable about having to provide a higher level of service. Good luck and let us know how you make out. This sounds like a task many of us will need to take care of at some point in the PD progression. NMW |