Helping Those Who Care for Parkinson's Patients
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Hello all: As I explained in a previous post I placed my HWP in a memory care facility about 1 1/2 months ago. The update on this is that we spent most of the night in the ER after he tore the handrail off the wall and strong-armed an aide then sat down in the hall and would not communicate with anyone. They refused to allow him to return to the facility until the next morning. It was an awful experience for everyone involved. Mind you, this man is hands down the most gentle soul under all conditions and he is the epitome of a gentleman; he would be mortified. It seems that an attempt to reduce a medication resulted in this uncharacteristic behavior. It is being increased to the previous level. The behavior was not his ‘fault’. He was finally able to communicate that he was fighting to save our two daughters from some hallucinated danger. This is just heartbreaking for us. Just an update as I navigate my way through this nightmare- NoMatterWhat |
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Sorry to hear this NMW I hope things get better for both of you. Right now my HWP is in a nursing facility right down the road. He was transferred there from the hospital where he spent a week as the staff was trying to get his meds straightened out. He actually called me from his room this morning and sounded the the most coherent than he's been for the last two weeks. I am now trying to figure out the next steps to take to have him moderated here at home. I made three phone calls to three different people and got absolutely nowhere. They either didn't answer their phone or they're closed today. Very frustrating but I'm sure we'll all survive this terrible nightmare. I'm sure glad we have each other to lean on! |
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| Thinking about everyone. Mom's confusion, hallucinations, and memory are not great. But when she is doing well, we can have fairly long conversations about things that happened decades ago. She can remember that stuff pretty well, occasionally dreaming or hallucinating things that didn't happen, but much of the time I find myself talking to her the same way I did years ago about the same things. It's nice to forget about everything else and just talk. I don't know what life will be like for me when that's gone. I was an only child, no wife, no kids, no nieces, no nephews. My personal life was spent holding dad together with his PTSD, etc., until he passed a couple years ago, and holding mom together with her Parkinson's. The story of my life is overwhelmingly shared with them, and dad's gone and mom is fading. |