Helping Those Who Care for Parkinson's Patients
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My hubby (PWP) had a TIA or mini stroke last Sunday morning. He couldn’t get out of bed and I called 911. The stroke symptoms dissipated over several hours. However he also complained to the ER that his lower abdomen hurt and they did a CT scan on both his head and abdomen and discovered he had diverticulitis, infection and a small perforation. Yikes! So he has PD, heart disease, diabetes, vascular issues in his legs, now this. He was in the hospital three days. He’s doing ok but it just seems like the hits keep coming. He never told me about his abdomen pain. I’m just hoping my health stays good so I can continue to care for him. Thought I would pop on here to whine a little. Most people just don’t understand what it’s like. Right now I’m still in that heightened state of alert - expecting something else. I keep talking myself down daily trying to relax and breathe. We have a follow up appointment tomorrow morning. I have to contact his neurologist tomorrow as well and in February they want him to have a colonoscopy. Thanks for being a place to land. |
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| Thinking of you. Hang in there. |
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Update. Well folks it got a lot worse before it got a bit better. Hubby was doing PT following the TIA to help with strength and balance. The balance has been really bad with the PD plus the TIA. He had his legs scanned in March and showed that the stents in his right leg were blocked again (vascular disease) and they felt that it wouldn't be safe to try to "drill" through again to open them. He had enough peripheral blood flow to the lower leg, but any exertion caused leg cramps. They decided to schedule a CT scan to determine what if anything they could do. It was scheduled for April 13th. However, on April 11th he had another stroke and hospitalized. The scan had to be rescheduled. April 24th we noticed discoloration of his toes on the right foot. He finally got the CT scan, and they determined the best course of action was a vascular bypass using a cadaver vein. By the time they got that scheduled his 4th toe had deteriorated to the point it needed amputation. So following a 10 day hospital stay, the bypass surgery, waiting 2 days to make sure it "took" he had a toe amputated. All of this on top of PD. He has been home recuperating and slowly gaining strength. I have been taking care of him, the house, the yard and if I have time, myself. He is obsessed with the carpet being vacuumed, which to be honest is at the bottom of my list. He is focused on being able to drive again. He has not really been driving since Dec 2025 following the initial TIA. He has driven around the block and he said he wasn't really comfortable driving. I'm hoping I can convince him that the time has come to give it up. We have a nurse coming to the house once a week and Physical Therapy once a week coming as well. He is feeling good enough now to try to do things and as a result has fallen twice. I am finally able to leave him for a few hours at a time but worry about him the entire time I'm gone. I realize most of this doesn't have much to do with PD, but it is an underlying factor that affects him. Hospital stays really screw up his medications. He is also diabetic, so that gets factored into everything too. sigh. I'm doing much better but every day is a struggle. Thank you all for being here. |
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| Ultimately it ALL has to do with PD, because the PD makes everything else harder. Thinking of you. |