I Hope You Haven’t Been Freaked Out!
I have been thinking about the recent columns I have written and realized that they are reflective of the difficult times Stan and I are facing now that the disease has progressed so much – approaching 21 years. I am imagining that caregivers who are new,...Imperfect Endings: A Daughter’s Tale of Life and Death
The following is an excerpt from my memoir, Imperfect Endings: A Daughter’s Tale of Life and Death. The book is about my mother’s decision to end her life after living with Parkinson’s disease for many years and the struggle my two older sisters and...In the Beginning
Our life with Parkinson’s Disease began in 1980. I’ll always remember because it had been the most stressful year of Stan’s life. He was commuting from the Maryland suburbs of Washington, DC to Johns Hopkins University in Baltimore for another round...It Is About Tricking the Neural Pathway
Notes from the author of Ultimate Parkinson’s Tips to Walk Faster, Stand Up, Unfreeze, Turn in Bed, and More Ever since Dyskinesia became a problem for me (five years ago), I began experimenting with reducing my medication in an effort to reduce the...It’s OK to Get Angry
Do you ever get angry? As caregivers, I think we all get angry at times and I believe that it’s okay. ‘Anger is a signal and one that is worth listening to. Our anger can be a message that we are being hurt, that our rights are being violated, that our...Joe, Doors and Parkinson’s disease
What a strange, symbolic and literal relationship this is. Let’s take a look, if You’re reading this, someone you know and love has or had Parkinson’s disease. At sometime they arrived in a Neurologist’s office — I’ll start there. Here we...Living with Parkinson’s – Lessons Learned
On March 31 st of this year, I will observe my eleventh year of being diagnosed with Parkinson’s disease. As I say that, repeating it out loud, “eleven years,” it prompts me to realize how quickly these years have gone by. At the same time, I’m truly mindful of how...Musing About Two Different Parkinson’s
Parkinson’s Law: C Nortcote Parkinson wrote and proposed this satirical criticism simply put “work expands to fill the time available for it’s completion.” This principal is for business, as it goes, an official in order to appear busy makes up...Parkinson’s Treatment: 10 Secrets to a Happier Life
Guest commentary by Michael S. Okun, M.D. , National Medical Director, National Parkinson Foundation. The reason I wrote this Parkinson’s Treatment Book, was to reach as many people from as many cultures and languages worldwide and to arm them with 10 secrets...
Adaptive Eating Utensils
Weighted Knives Forks and Spoons Silverware Set for People with Parkinson’s. Designed to give better control for those with dexterity concerns, this four-piece set includes one each: tablespoon, teaspoon, knife, and fork with rubberized handles to make mealtime easier and more pleasant.