How Do I do This?

When we get married as young adults, we have wonderful, limitless expectations for our life ahead with the person that we love. We have dreams, and hopes, none of which include our loved one being diagnosed with a progressive neurological disease. At first we are able...

Are you still trying to develop a positive attitude?

Last month we began a discussion about how important having a positive attitude is to being a good caregiver – and feeling good about yourself. Remember, life is 10 percent what happens to you and 90 percent how you react to it. That may be a hard concept to...

I hope you haven’t been freaked out!

I have been thinking about the recent columns I have written and realized that they are reflective of the difficult times Stan and I are facing now that the disease has progressed so much – approaching 21 years. I am imagining that caregivers who are new,...

The Stress of Caregiving

Taking care of a loved one is one of the most stressful experiences we may ever have. There are many factors that can be involved in causing stress in a caregiver. Feelings such as anxiety, isolation, frustration, and guilt, fears for the future, and an unexpected and...

Hospitalization and Parkinson’s disease

Stan had back surgery – a ‘laminectomy’ to relieve the extreme pain he had been having in his hip and leg. The pain had prevented him from walking at all for several months, so we decided it was time to do something about it. Our neurologist and internist...