I hope you haven’t been freaked out!

I have been thinking about the recent columns I have written and realized that they are reflective of the difficult times Stan and I are facing now that the disease has progressed so much – approaching 21 years. I am imagining that caregivers who are new,...

Are You Ever Afraid?

I know fear must be a common component of caregiving. There are so many unknowns that we face in dealing with a chronic disease. We don’t know what the future holds for our loved one and ourselves, nor do we know how things will be in one year, five years, or at...

Caregiver’s Bill of Rights

Last month, I incorporated the “Caregiver’s Bible” into my column. This month I’d like to take a look at the “Caregiver’s Bill of Rights,” whose author is also unknown, but has also been in many caregiver publications. I...

The Parkinson’s way

“There are moments when everything goes well. Don’t be frightened. It won’t last.” That’s where I am right now. Everything is stable and going pretty well. Stan’s medications are managing the Parkinson’s well, and the addition...

Caregivers also ‘have’ Parkinson’s Disease

The longer I am a caregiver, the more I realize that it’s very important to understand yourself and what your needs are – what satisfies you – what kinds of behaviors make you angry – what makes you happy and thus more patient? Why is this important and...
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